Building collaboration for action ethnography on care, disability and health policy and administration of public service for women and caretakers of Zika virus affected children in Pernambuco, Brazil

The aim of this project is to promote well-informed dialogue and collaboration between affected groups and service-providers about the biological, social and emotional effects of Zika. The research will pursue an understanding of therapeutic itineraries of affected populations and their capacity for accessing necessary care, exploring demands and rights.

An additional focus will be on analysis of service provision and access, including the perspectives of the providers of relevant health and social care services. This requires creation and dissemination of material that contributes to broaden recognition of service needs, provision and entitlements, and improve intersectoral integration of health and public services, locally and beyond. The priority action of the research team and of key actors from groups involved in the project will be to collaborate to achieve such social impact. We aim to achieve this through international collaboration that builds links between key UK and Brazilian institutions and will bring capacity building in interdisciplinary research and engagement between researchers with core expertise to approach these questions.

Watch the launch seminar

Sharing lessons from the Zika epidemic

Project partners


Recent work


How do Women of Reproductive Age Perceive the Zika Virus, Future Vaccines, and Participation in Clinical Trials?

Field report of three funded research projects: a) FINATEC, the University of Brasília Research Foundation (2016-2017); b) Pro-IC, the University of Brasília’s scientific initiation fund (2016-2019); and c) CNPq (2016- 2019). The goals, activities and outcomes slightly changed and advanced.

Aissa Simas & 5 others

1 January 2019


The Implementation of Intersectoral Actions of Health and Social Assistance to Assist Children with Congenital Zika Syndrome in the State of Rio de Janeiro

This study is part of the set of projects supported by the ZIKAlliance Social Sciences Research Group, the Oswaldo Cruz Foundation, which was established to investigate various historical, social and political realms of the Zika epidemic in Brazil. The study was conducted by researchers from...

Sandra Venancio de Siqueira & 4 others

1 January 2019


Action Ethnography on Care, Disability and Health Policy and Administration of Public Service for Women and Caretakers of Zika Virus Affected Children in Pernambuco, Brazil

In Brazil, the Zika epidemic, a national and public health emergency declared in 2015, and in effect until early 2016, caused severe neurological damage to over three thousand newborn children (3.179 confirmed cases up to the fifteenth week of 2018), of which, by the same date, 451 were from the...

Russell Parry Scott & 5 others

1 January 2019